Today is World Autism Day. The global awareness campaign is called Light It Up Blue. I wrote this poem for Griffin in 2000. He was six and still not speaking. He can speak a little now, but is still considered low verbal. His twin sister was diagnosed on the spectrum as an adult. She struggles with her social skills and it has affected her in many ways, including her ability to stay employed. I am wearing blue, for whatever that's worth, so I can promote awareness, so folks will donate, so more research will happen, and so kids like my twins will be helped to have better lives.
I am so lucky that I get to be their mom.
Unspeakable
(for
Griffin)
He
does not speak.
Longing
defined
I once
imagined words like angry ravens
caged
and mocking.
All
the glossy scavengers
pecking
at my son's head,
and
calling out
though
he cannot.
The
unkindness whipping him into screaming
rages,
their claws tearing,
their
muscular wings beating,
me
crouched over him, yelling
at his
twin to go go GO
hide
in my room.
He
batters my body like it is the glass window
that
won't let him reach the sky.
So
many days for this child I love madly
I
swallow my lions
and my
pride roars
a
wounded salute.
So
many middle-of-the-nights I wait.
A
watch of nightingales
sings
a dim vigil over a mangled sound.
Sometimes
in the storm with him I feel love grow sharp
with angry
edges,
for
him, my tiny tyrant –
my
child of grief and euphoria.
Two
years ago, when he was four,
he
pushed his magnetic letters thoughtfully together and spelled
ALL
RIGHTS RESERVED,
it's
freakish perfection, a painful poem,
a
declaration of himself as Self –
whatever
his level of understanding.
I see
an image of my Self then
releasing
the other child,
the
one locked
and
talking
behind
the glass.
This
one is my son.
This
one.
Sometimes
his joy-filled wordless song soars
across
me – (I cannot reach you)
and
captures (I cannot separate).
In my
heart he is the larks – an exhilaration.
His
voice
an
absence
a cry
of hounds.
*Tangled Up In Blue - Bob Dylan
Stunningly beautiful, Toni.
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ReplyDeleteThank you! Also thank you for the added "e". I have a quirky spelling! (Thanks to awesome Cuban parents)
ReplyDeleteSo strong and moving. Thank you for sharing this with us.
ReplyDeleteMaggie
thank you so much, Maggie! ❤️
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